THINGS ARE CHANGING

Hi folks,

its been a strange 24 hours and things have changed a lot at the hospital, I will try to mke sense of it here for you and keep it short.

Yesterday we eventually saw the neurosurgeons, after some more tests they decided not to go ahead with surgery and just go with the chemo. The plan was for us to be discharged Saturday moring and see Professor next week to discuss the long term treatment plan. However we were to keep an eye on Peter to make sure nothing changed.

So last night Lillian stayed with him, Peter changed and suddenly was very sick, vommitting and feeling dizzy. They didn;t sleep much at all. I came in very early and he was not well. This has now changed things again. The surgeons have had another look and are now considering surgery again. Also our main doc who's day off it is today came in and also called the professor (again who is supposed to still be on his holidays). He looked at Peter and the scans etc and he is thinkign that perhaps its not Non Hodgkins Lymphoma after all but another type of Tumour that can look like it but is very different, but that might not be good news. So again everything is still up in the air, the surgeons and paediatric doctors need to discuss and try to get an accurate daignosis. We desperatly need the test results from KEMRI but they still haven't produced anything. The plan now is that Peter stays in the hospital, may have some surgery next week if its deemed necessary, but will start some medication on Tuesday after more tests.

Its been very frustrating and confusing and also worrying. I am so annoyed we still don;t know but I am so glad we are here at Aga Khan because I knw we have the best doctors workin on him, it seems like its really tricky to fully diagnose. So we need to be patient and wait, and unfortately Peter will; be staying in the hospital now until things change again.

I will keep you posted.

k